{"id":295,"date":"2021-03-11T14:13:41","date_gmt":"2021-03-11T13:13:41","guid":{"rendered":"http:\/\/afpcahome\/site\/?page_id=295"},"modified":"2024-05-29T09:02:48","modified_gmt":"2024-05-29T07:02:48","slug":"volet-social-et-demarches","status":"publish","type":"page","link":"https:\/\/afpca.fr\/site\/volet-social-et-demarches\/","title":{"rendered":"Volet social et d\u00e9marches"},"content":{"rendered":"\t\t
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Malgr\u00e9 l’ensemble des th\u00e9rapeutiques connues \u00e0 ce jour votre sant\u00e9 ne vous permet plus de travailler normalement. Quels sont vos droits? Quelles possibilit\u00e9s vous sont offertes ? Nous avons voulu vous aider \u00e0 suivre le parcours utile pour l’obtention de revenus de compensation et diverses aides. Cette page vous dirigera sur les liens officiels des organismes comp\u00e9tents.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t

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Formulaire compl\u00e9mentaire MDPH pour les handicaps rares et les maladies rares<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
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Les Fili\u00e8res de Sant\u00e9 Maladies Rares (FSMR) sont heureuses de vous proposer un nouveau document qui vient compl\u00e9ter le dossier MDPH : \u00ab Le formulaire compl\u00e9mentaire pour les handicaps rares et les maladies rares<\/strong>\u00a0\u00bb.<\/p>

Ce formulaire est issu d\u2019une collaboration entre les FSMR, le GNCHR (Groupement National de Coop\u00e9ration Handicaps Rares), les ERHR (Equipes Relai Handicaps Rares) et les repr\u00e9sentants d\u2019associations de patients avec l\u2019appui de la CNSA (Caisse nationale de solidarit\u00e9 pour l’autonomie)….>\u00a0 lire la suite et t\u00e9l\u00e9charger le formulaire<\/a><\/strong><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Qu\u2019est-ce qu\u2019une A.L.D. ? (affection de longue dur\u00e9e exon\u00e9rante)<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Une affection de longue dur\u00e9e exon\u00e9rante est une maladie qui n\u00e9cessite un suivi et des soins prolong\u00e9s (plus de six mois) et des traitements co\u00fbteux ouvrant droit \u00e0 la prise en charge \u00e0 100 %.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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La PCA (polychondrite chronique atrophiante) entre dans la cat\u00e9gorie des affections non inscrites sur la liste et r\u00e9pondant aux crit\u00e8res ci-apr\u00e8s\u00a0 : forme \u00e9volutive ou invalidante d’une affection grave caract\u00e9ris\u00e9e par des soins d’une dur\u00e9e pr\u00e9visible de plus de six mois.<\/p>

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\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/main>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Les d\u00e9marches \u00e0 suivre
en cas d\u2019invalidit\u00e9<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Les droits des usagers
du syst\u00e8me de sant\u00e9<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tSite de l'Union Nationale des Associations Agr\u00e9\u00e9es d'usagers du Syst\u00e8me de Sant\u00e9<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Les personnes
\u00e0 votre \u00e9coute<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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La station de radio associative \u201cVivre FM\u201d donne la parole aux personnes concern\u00e9es par la maladie (au sens large) :<\/em><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\n\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\tSite de la radio Associative \"Vivre FM\"<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/article>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Malgr\u00e9 l’ensemble des th\u00e9rapeutiques connues \u00e0 ce jour votre sant\u00e9 ne vous permet plus de travailler normalement. Quels sont vos droits? Quelles possibilit\u00e9s vous sont offertes ? Nous avons voulu vous aider \u00e0 suivre le parcours utile pour l’obtention de revenus de compensation et diverses aides. Cette page vous dirigera sur les liens officiels des […]<\/p>\n","protected":false},"author":10,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-295","page","type-page","status-publish","hentry","post"],"yoast_head":"\nVolet social et d\u00e9marches - Association Francophone Contre La Polychondrite Chronique Atrophiante<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/afpca.fr\/site\/volet-social-et-demarches\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Volet social et d\u00e9marches - Association Francophone Contre La Polychondrite Chronique Atrophiante\" \/>\n<meta property=\"og:description\" content=\"Malgr\u00e9 l’ensemble des th\u00e9rapeutiques connues \u00e0 ce jour votre sant\u00e9 ne vous permet plus de travailler normalement. 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