{"id":1905,"date":"2021-07-05T11:45:12","date_gmt":"2021-07-05T09:45:12","guid":{"rendered":"https:\/\/afpca.fr\/site\/?p=1905"},"modified":"2023-11-23T11:14:35","modified_gmt":"2023-11-23T10:14:35","slug":"juillet-2021-assemblee-eurordis-resolution-de-lonu-sur-les-personnes-atteintes-de-maladie-rare-plan-daction-europeen-pour-les-maladies-rares","status":"publish","type":"post","link":"https:\/\/afpca.fr\/site\/juillet-2021-assemblee-eurordis-resolution-de-lonu-sur-les-personnes-atteintes-de-maladie-rare-plan-daction-europeen-pour-les-maladies-rares\/","title":{"rendered":"Juillet 2021 : assembl\u00e9e Eurordis – r\u00e9solution de l\u2019ONU sur les personnes atteintes de maladie rare et plan d\u2019action europ\u00e9en pour les maladies rares"},"content":{"rendered":"\n\n\n\n
Quel succ\u00e8s aura \u00e9t\u00e9 cette Assembl\u00e9e g\u00e9n\u00e9rale EURORDIS 2021 ! Collectivement, non seulement nous avons d\u00e9battu des enjeux auxquels la communaut\u00e9 maladies rares doit faire face en Europe, mais nous avons aussi d\u00e9fini les orientations de nos actions pour les cinq ann\u00e9es \u00e0 venir. Nous accueillons par ailleurs chaleureusement les membres r\u00e9\u00e9lus ou nouvellement \u00e9lus au Conseil d\u2019administration : Avril Daly, Elizabeth Vroom, Simona Bellagambi, Anna Arellanesov\u00e1 et Alexandre Mejat.<\/p>\n

Temps fort de cette \u00e9dition :<\/strong> Nous vous avons pr\u00e9par\u00e9 de nouveaux supports de communication pour plaider en faveur de la toute premi\u00e8re R\u00e9solution de l\u2019ONU sur les personnes atteintes de maladie rare<\/a> et d\u2019un plan d\u2019action europ\u00e9en pour les maladies rares<\/a>. Jetez-y un \u0153il !<\/td>\n<\/tr>\n

\"Anja<\/td>\n\n
\n

 <\/p>\n

Anja Helm<\/strong>
\nSenior Manager of Relations with Patient Organisations<\/p>\n

Ajoutez-moi \u00e0 votre r\u00e9pertoire<\/a><\/p>\n<\/div>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n","protected":false},"excerpt":{"rendered":"

Quel succ\u00e8s aura \u00e9t\u00e9 cette Assembl\u00e9e g\u00e9n\u00e9rale EURORDIS 2021 ! Collectivement, non seulement nous avons d\u00e9battu des enjeux auxquels la communaut\u00e9 maladies rares doit faire face en Europe, mais nous avons aussi d\u00e9fini les orientations de nos actions pour les cinq ann\u00e9es \u00e0 venir. Nous accueillons par ailleurs chaleureusement les membres r\u00e9\u00e9lus ou nouvellement \u00e9lus au […]<\/p>\n","protected":false},"author":10,"featured_media":1434,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1905","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-non-classe","post-with-thumbnail","post-with-thumbnail-large"],"yoast_head":"\nJuillet 2021 : assembl\u00e9e Eurordis - r\u00e9solution de l\u2019ONU sur les personnes atteintes de maladie rare et plan d\u2019action europ\u00e9en pour les maladies rares - Association Francophone Contre La Polychondrite Chronique Atrophiante<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/afpca.fr\/site\/juillet-2021-assemblee-eurordis-resolution-de-lonu-sur-les-personnes-atteintes-de-maladie-rare-plan-daction-europeen-pour-les-maladies-rares\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Juillet 2021 : assembl\u00e9e Eurordis - r\u00e9solution de l\u2019ONU sur les personnes atteintes de maladie rare et plan d\u2019action europ\u00e9en pour les maladies rares - Association Francophone Contre La Polychondrite Chronique Atrophiante\" \/>\n<meta property=\"og:description\" content=\"Quel succ\u00e8s aura \u00e9t\u00e9 cette Assembl\u00e9e g\u00e9n\u00e9rale EURORDIS 2021 ! 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